Doing Good

Breen did well during surgery, he’s coming out of anesthesia now.

Surgery cat called us halfway through the operation, and we approved them to put a G-Tube in. The amount of scar tissue indicated that Breen would probably need one at some point, and since he was already open, it was much easier to pop it in today.

Doctor was happy with how it went, was able to reconnect everything without trouble.

However, he was disappointed with the amount of healthy bowel. Breen has about 65 centimeters. They now know he lost a large percent of his bowels from the necrotizing enterocolitis. A full-grown adult needs a minimum of 100 cm in order to live with no IV nutrition.

Two things about that (from what I understand):

  1. Most of the bowel grows during the third trimester, so there won’t be a ton of length added as Breen grows to adulthood. Dr. said our kid “will probably need IV nutrition for a while.” Jon said, “Years?” and Dr. replied, “Yes, maybe.” They will call the intestinal rehab team to keep close eye on us.
  2. Adults do not require the massive amount of nutrition that tiny babies need. Some math about calories per kilogram means that a baby actually needs as much intestine as possible in order to absorb all that he needs.

That’s the scoop for now. Breen will be at a lifetime risk for strictures, but it’s manageable. Sounds like he was stable throughout the procedure. Pain control is a concern because he’s been on so many meds so long. We’ll know more and let you know how he’s doing later.

Thank you for being part of this.

--

--

Get the Medium app

A button that says 'Download on the App Store', and if clicked it will lead you to the iOS App store
A button that says 'Get it on, Google Play', and if clicked it will lead you to the Google Play store