10/23, Jon

Just a quick update.

Breen has been home for just over a week, having been discharged last Friday the 15th. It’s heaven. It’s so sweet.

Nora is an incredible sister. She coos, plays peek-a-boo, kisses and pets him, and has asserted herself as Breen’s chief babbling interpreter. …

10/11, Jon

It’s Friday.

Breen comes home on Friday.

Still a couple things to work out, but we’re looking to get trained on the oxygen and feeding medical gear on Thursday, and spend Friday getting that little guy out of the NICU.

Out. Of. The. NICU.

Home.

The other complication…

10/6, Jon

We had our care conference yesterday with Dr. O, Breen’s pediatrician Dr. P, occupational therapist, physical therapist, bedside nurse, head nurse, and the social worker.

It was a wonderful meeting that was centered around coming up with a discharge plan. We discussed some specifics about administering breathing treatments…

This amazing guy…

10/4, Jon

First off, a couple more anniversaries:

October 3rd marked our 2 month anniversary at Portneuf Medical Center. Back home with our original tribe. They’ve done an astounding job with Breen.

October 5th will mark his 4 month anniversary since being extubated after being intubated for…

9/29, Jon

Flow — Amount of liters/minute of oxygen going through nasal cannulas

FIO2 — The percentage of pure oxygen that is blended into what is going through nasal cannulas

Blood Oxygen Saturation (SPO2) — The percentage of oxygen in your blood at any one time

Breathing Rate — Amount…

9/28/21, erin, windy, in a rush

bardo refers to that state in which we have lost our old reality and it is no longer available to us.

I had bad dreams last night. My father had been dead a year, and we’d held his funeral, but he was somehow dying again. …

9/25, Jon

Breen will be 8 months old on Monday. It’s impossible. He’s impossible.

Well, he also turned 4 months old on the 20th of September, because his original due date was May 20th. …

9/17/21, erin, record room, after midnight, oh, it’s 9/18

The weather, that cat, our toddling cublet down the hall.

The nights here shatter, even when they’re silent.

Summer starts toppling toward fall.

In the smallest hours, I wake, and I ache the most.

I want the baby.

I admire, respect, honor, celebrate, and thank Breen’s caretakers.

But I wake, raving.

I subsume reptile…

We are now at 5 liters per minute of O2 support.

9/12, Jon

He’s doing great actually, gaining weight like crazy (he’s up into the mid 30’s percentile! He used to be 0th!), and is pleasant, joyful, and massive. Breen is now 12 lbs 9 oz!

He is well loved…

11lbs 15oz! We almost gotta 12 pounder! What a chunker. Dr. O likes to call him chub chub.

9/7, Jon

Nora brought a flu bug home from preschool, and the whole family got knocked flat. Sore throats, fevers, nausea. Nora seems to have kicked it, but the adults are still…

Jon and erin! Armstrong

Parents of Breen and Nora.

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